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News and Articles about HIV that we have shared on our blog

Looking After Your Mental Health When Living With HIV

This post originally appeared on Avert.Org:

Young woman on a swing in the sunshine


• It’s normal to have ups and downs when living with HIV.

• Being mindful of your worries, and seeking support from others, is a great way of maintaining your mental health. Remember you’re not alone.

• If you think you are suffering from depression, your healthcare professional may be able to help with counselling or antidepressant drugs.

If you’re living with HIV, you may have been given plenty of guidance and treatment on how to look after your physical health, but looking after your emotional and mental health is just as important.

There are many different types of mental health issues, such as depression, anxiety disorders, low self-esteem or personality disorders. They can affect anyone and everyone, but living with HIV can cause additional worries that may make you more likely to experience a mental health problem.

Here we look at ways to maintain good mental health and ways to tackle some concerns you might be facing.

While I no longer dwell on the past, I do have days when I feel depressed because of the whole situation. But then I look at my life and the things I have achieved, and that makes me feel better and more determined to do something with my life. – Kain

I’m worried about…

Living with HIV

From learning you are HIV-positive, to starting lifelong treatment or deciding the best way to share your diagnosis, you may have worries that are specific to living with HIV, which may in turn affect your mental wellbeing. We’ve got lots of information in our living with HIV section to help you with this.

Stigma and changing relationships

You may experience stigma and discrimination from people who don’t understand HIV and have negative views about it. This can be very hard to deal with, especially if it comes from people you are close to and/or if these relationships change as a result.

It can help to have information about HIV to hand – this way you can explain what it means to live with HIV today. Sharing the facts about how treatment has now made HIV a manageable, and even untransmittable, condition can help to dispel some of the common HIV myths and assumptions that some people may have.

Also, you may find comfort in talking to people who already understand the reality of living with HIV, such as a healthcare professional or support group.

“It’s getting easier as time passes, as I can explain that I’m okay and doing well on meds.” – Benoite

Antiretroviral drug side effects

As with most medication, there are some potential side effects that come with taking ARVs. Some people experience increased feelings of anxiety or depression after starting treatment for HIV, and if these are ignored they can be debilitating.

If you’ve had mental health problems in the past, it’s helpful to tell your healthcare professional when discussing treatment options.

Don’t hesitate to contact your healthcare professional if you think you’re experiencing depression and that your ARV treatment may be affecting you.

How can I look after my mental health when living with HIV?

Recognising the way you’re feeling is the first step to managing your emotional wellbeing when living with HIV. Here are some tips to help you manage:

Know what to look out for

Some people who experience mental health problems have trouble taking their HIV treatment correctly and may miss doses, skip appointments or not eat a healthy, balanced diet.

Don’t hesitate to reach out to someone if you find that any of these feelings are overwhelming or last for longer than two weeks:

  • Feeling depressed, hopeless, ashamed or guilty most of the day and almost everyday.
  • Feeling constantly fatigued/tired.
  • Overeating or loss of appetite and/or weight loss.
  • Finding it hard to concentrate or sit still.
  • Suicidal thoughts.

Your healthcare professional will be able to find you the right support for you. They might suggest you switch your ARVs or take additional antidepressants if these symptoms persist. 

Talk to family and friends

Sometimes it’s hardest to talk to those you love because you might be scared of their reaction or of upsetting them. However, they could be the greatest source of help and support because they already know you and can help you to feel less alone. 

“I do talk to very close friends about it – it’s important to have at least one person who isn’t a clinician that you can talk to because they are helpful.” – Kain

Find support groups and helplines

If the support of family and friends isn’t possible, you might prefer to talk about your feelings with someone at a helpline or support group – a healthcare professional can help you find one.

The fact that you don’t know these people personally may help you to talk honestly about your feelings and living with HIV. In return, they can offer you practical and emotional wellbeing advice. 

“Family are a great support system to have through it all… but if you don’t have that, there are numerous support groups that work with HIV infected persons.” – Curt

Share your feelings with your healthcare professional

Your healthcare professional isn’t just there to give you treatment and check your viral load. They also need to know if you’re experiencing other difficulties that could affect your overall health, such as mental health problems.

They may suggest treatment that includes antidepressant drugs or talking therapies, such as counselling or cognitive behaviour therapy (CBT). 

Find some sort of positive support from the time you find out until the time you can rely on yourself. You are not the disease – it is a part of you. – Curt

Exercise and staying healthy

Getting enough exercise, sleep and nutrition is important for a healthy mind and the benefits can be even more significant for anyone who is living with HIV.

Many people find that changing to a healthier lifestyle helps with some of the symptoms and enables them to get some control back in their life. Drinking too much alcohol or being dependent on drugs could also have a big impact on your mental health and the success of your treatment. 

Don’t be too hard on yourself

It’s normal to have negative feelings and feel fearful about what the future holds.

Often it’s about learning how to cope with feelings of uncertainty and, in many cases, this can be hard to do without the support of loved ones or a mental health professional. 

“I’ve learnt a lot about myself since my diagnosis and how I deal with things; I’ve become more headstrong and I don’t give up very easily.” – Kain

Do things that relax and interest you

You may lack interest in activities that you used to enjoy, but keeping active is one of the best ways to break the cycle as it lifts your mood and energy levels, increases your appetite and improves your quality of sleep. 

Even small activities such as a walk around the park, 10 minutes of yoga or some gardening may help to relax and distract you from any negative thoughts.

Photo credit: ©Unsplash/Llywelyn Nys

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HIV Long Term Survivors Day

From the NAPWHA Facebook page:

June 5th is HIV Long Term Survivors Day and we commemorate and celebrate the lives, bravery and advocacy of those who paved the way for every facet of the HIV response.

“To all long term survivors out there today we are acknowledging the major ups and downs you have been through on your journey to stay alive, and with as much quality of life as possible. You are respected within the HIV community and beyond for the challenges you have faced, including the grief and loss that has been so much a part of our lives in the past. Stay strong and support each other. We are each other’s heroes.” – David Menadue

The Forgotten Generation?

Modern advancements such as U=U have redefined what it means to live with HIV. But, as Ross Duffin reports, for the long-term survivors the lived reality is not so rosy. Read More:

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PLHIV and Ageing Community Survey – Royal Commission into Aged Care Quality and Safety

Survey Background – The Australian Government is holding a Royal Commission into Aged Care Quality and Safety. The Royal Commission will provide Australian people living with HIV (PLHIV), their partners, carers, family and friends, HIV service providers and Aged Care services with a rare opportunity to make clear to the Australian Government, the current and future Aged Care service needs of PLHIV in all Australian states and territories.

To advance this objective, Positive Life NSW and NAPWHA will write a submission to the Royal Commission. The submission will closely align with the Royal Commission’s Terms of Reference and provide qualitative and quantitative data on the following:

–   Whether Aged Care services meet the needs of Australian PLHIV (current and future) and whether the quality of services is acceptable, or needs to be improved?

–   Whether there are PLHIV who need Aged Care services, but are ineligible (system gaps, for example, PLHIV under age 65 years)?

–   If there is evidence of mistreatment, abuse or discrimination of PLHIV in the Aged Care service system and how the abuse, mistreatment or discrimination manifests?

–   How services would best be provided to PLHIV with neurocognitive disorders? and;

–   Preference about where PLHIV would like to receive Aged Care services (at home, in a residential Aged Care facility, in another type of facility/model of care) and why?

To provide PLHIV and others associated with the care of PLHIV with an opportunity to provide this advice, Positive Life has developed an anonymous online survey. The survey will target: PLHIV; the partners, carers, friends and family members of PLHIV; HIV service providers, and; Aged Care service providers. The survey has been peer-reviewed by individuals from each of the four target groups.

The issue of PLHIV and ageing has been discussed within the HIV sector for at least the last decade. Although there has been published international literature on the issue of HIV and ageing in European and American studies, the Royal Commission will be most interested in Australian research that clearly articulates the current and projected needs for Aged Care service over the next 10 to 20-years. Data from this survey will play an important role in providing this information.

Survey Distribution – To achieve feedback from all jurisdictions, we’re asking for your support to distribute the survey link to:

–   PLHIV and their partners, carers, and family members in your jurisdiction

–   HIV services providers (particularly clinicians, allied health and NGO HIV support workers etc.). You will know which service providers in your jurisdiction would be best qualified and more likely to provide information

–   Paper copies of the survey will also be available (upon request from Positive Life NSW)

Below is the link to the online survey for distribution. The link can be copied into an internet browser to access the survey.

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New study seeks to understand contemporary experiences of living with HIV in Australia

“Although we have come a long way in the past thirty years, with improvements to medications and knowing that treatment as prevention works, being diagnosed with HIV is still a significant event for an individual,” says Mr Brent Clifton, who is coordinating the study. “By engaging with the experiences of people who have recently been diagnosed with HIV, we’re hoping to find out why some people living with HIV today experience better care and wellbeing outcomes than others, and ultimately uncover the data that will allow us to fill these gaps.”

You can read more about the study here:

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Study reveals direct link between stigma and cognitive performance in people with HIV

“Our research shows that the neurological impact of HIV goes beyond pure biology,” says Dr. Lesley Fellows, a researcher at The Neuro and the study’s senior author. “The psychological and social environment in which the patient lives also plays a role. This study underscores the need for interventions that reduce social stigma and support resilience against its toxic effects on brain health.”


Read the full article at:

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